Please join us on Friday, February 26 at 1:00 p.m. PT for our virtual event celebrating UCLA Rare Disease Day 2021.
Hear from California Center for Rare Diseases at UCLA clinical experts, share in patient stories, and learn from advocacy leaders in the community.
This is a free event but you must register to receive the Zoom Webinar login details. REGISTER HERE.
Founder, Guthy-Jackson Charitable Foundation
"Advocacy and Connecting with Community"
Entrepreneur and Survivor Winner; Founder, Perthes Kids Foundation; California State Ambassador, NORD’s Rare Action Network
Star, Teen Mom; Founder, Rage Regardless Ry
Manish Butte, M.D., Ph.D
E. Richard Stiehm Endowed Chair; Associate Professor, Pediatrics, Microbiology, Immunology, and Molecular Genetics; Division Chief, Pediatric Immunology, Allergy, and Rheumatology
Julian Martinez, M.D., Ph.D.
Associate Professor, Human Genetics, Pediatrics, and Psychiatry; UCLA Undiagnosed Diseases Network Program and Autism Intervention Research Network on Physical Health
Deborah Krakow, M.D.
Professor, Obstetrics and Gynecology, Human Genetics, and Orthopaedic Surgery; Chair, Department of Obstetrics and Gynecology
Stanley F. Nelson, M.D.
Professor, Human Genetics, Psychiatry, and Pediatrics; Co-Director, Center for Duchenne Muscular Dystrophy; Director, California Center for Rare Diseases at UCLA
Perry Shieh, M.D., Ph.D.
Professor, Neurology and Pediatrics
Daniel Geschwind, M.D., Ph.D.
Gordon and Virginia MacDonald Distinguished Professor; Senior Associate Dean and Associate Vice; Chancellor, Precision Health; Director, UCLA Institute for Precision Health
Clara Lajonchere, Ph.D.
Adjunct Professor, Neurology; Deputy Director, UCLA Institute for Precision Health
For inquires, contact email@example.com.
To learn more about the California Center for Rare Diseases, visit www.rarediseases.ucla.edu.