We do not support your browser. Please take a moment and upgrade to the most recent version of Internet Explorer.
Events
 

UCLA Rare Disease Day 2021



Type: Event
Start Date: February 26, 2021 01:00 PM
End Date: February 26, 2021 03:00 PM
Location: Zoom details below.
Save this event to your calendar.  Download to Outlook Download to iCal

Hosted by the California Center for Rare Diseases at UCLA
and the David Geffen School of Medicine at UCLA

Please join us on Friday, February 26 at 1:00 p.m. PT for our virtual event celebrating UCLA Rare Disease Day 2021.

Hear from California Center for Rare Diseases at UCLA clinical experts, share in patient stories, and learn from advocacy leaders in the community.

This is a free event but you must register to receive the Zoom Webinar login details. REGISTER HERE.

FEATURING

Victoria Jackson
Founder, Guthy-Jackson Charitable Foundation

Stories from Patients

"Advocacy and Connecting with Community"
Earl Cole
Entrepreneur and Survivor Winner; Founder, Perthes Kids Foundation; California State Ambassador, NORD’s Rare Action Network
Cheyenne Floyd
Star, Teen MomFounder, Rage Regardless Ry


PANELISTS

Manish Butte, M.D., Ph.D
E. Richard Stiehm Endowed Chair; Associate Professor, Pediatrics, Microbiology, Immunology, and Molecular Genetics; Division Chief, Pediatric Immunology, Allergy, and Rheumatology

Julian Martinez, M.D., Ph.D.
Associate Professor, Human Genetics, Pediatrics, and Psychiatry; UCLA Undiagnosed Diseases Network Program and Autism Intervention Research Network on Physical Health 

Deborah Krakow, M.D.
Professor, Obstetrics and Gynecology, Human Genetics, and Orthopaedic Surgery; Chair, Department of Obstetrics and Gynecology

Stanley F. Nelson, M.D.
Professor, Human Genetics, Psychiatry, and Pediatrics; Co-Director, Center for Duchenne Muscular Dystrophy; Director, California Center for Rare Diseases at UCLA

Perry Shieh, M.D., Ph.D.
Professor, Neurology and Pediatrics 

INTRODUCTION

Daniel Geschwind, M.D., Ph.D.
Gordon and Virginia MacDonald Distinguished Professor; Senior Associate Dean and Associate Vice; Chancellor, Precision Health; Director, UCLA Institute for Precision Health

MODERATOR

Clara Lajonchere, Ph.D.
Adjunct Professor, Neurology; Deputy Director, UCLA Institute for Precision Health

For inquires, contact hsd_msdevents@mednet.ucla.edu

To learn more about the California Center for Rare Diseases, visit www.rarediseases.ucla.edu.


Return to Announcements & Events Listings