UCLA Rare Disease Day 2021

Please join us on Friday, February 26 at 1:00 p.m. PT for our virtual event celebrating UCLA Rare Disease Day 2021.

Hear from California Center for Rare Diseases at UCLA clinical experts, share in patient stories, and learn from advocacy leaders in the community.

This is a free event but you must register to receive the Zoom Webinar login details. REGISTER HERE.

FEATURING

Victoria Jackson
Founder, Guthy-Jackson Charitable Foundation

"Advocacy and Connecting with Community"
Earl Cole
Entrepreneur and Survivor Winner; Founder, Perthes Kids Foundation; California State Ambassador, NORD’s Rare Action Network
Cheyenne Floyd
Star, Teen Mom; Founder, Rage Regardless Ry

PANELISTS

Manish Butte, M.D., Ph.D
E. Richard Stiehm Endowed Chair; Associate Professor, Pediatrics, Microbiology, Immunology, and Molecular Genetics; Division Chief, Pediatric Immunology, Allergy, and Rheumatology

Julian Martinez, M.D., Ph.D.
Associate Professor, Human Genetics, Pediatrics, and Psychiatry; UCLA Undiagnosed Diseases Network Program and Autism Intervention Research Network on Physical Health 

Deborah Krakow, M.D.
Professor, Obstetrics and Gynecology, Human Genetics, and Orthopaedic Surgery; Chair, Department of Obstetrics and Gynecology

Stanley F. Nelson, M.D.
Professor, Human Genetics, Psychiatry, and Pediatrics; Co-Director, Center for Duchenne Muscular Dystrophy; Director, California Center for Rare Diseases at UCLA

Perry Shieh, M.D., Ph.D.
Professor, Neurology and Pediatrics 

INTRODUCTION

Daniel Geschwind, M.D., Ph.D.
Gordon and Virginia MacDonald Distinguished Professor; Senior Associate Dean and Associate Vice; Chancellor, Precision Health; Director, UCLA Institute for Precision Health

MODERATOR

Clara Lajonchere, Ph.D.
Adjunct Professor, Neurology; Deputy Director, UCLA Institute for Precision Health

For inquires, contact hsd_msdevents@mednet.ucla.edu. 

To learn more about the California Center for Rare Diseases, visit www.rarediseases.ucla.edu.