Virtual Rare Disease Day at NIH 2021

Registration for Rare Disease Day at NIH (RDD at NIH) 2021 is now open! RDD at NIH, sponsored by NCATS and the NIH Clinical Center, will take place virtually on March 1, 2021, from 10:30 a.m. to 5:30 p.m. EST. Each year, NIH hosts this event to raise awareness about rare diseases, the people they affect and research collaborations underway to address scientific challenges and to advance new treatments. The virtual event is free and open to the public.  

Register today and stay tuned for more details about the agenda.

Explore NCATS’ Efforts and Resources for Rare Diseases

Learn more about NCATS’ Office of Rare Diseases Research that facilitates and coordinates NIH-wide research activities for rare diseases as well as Rare Disease Day at NIH.

Visit NCATS’ Rare Diseases Community Resources page for materials and resources to help patients, caregivers, patient support organizations, health care providers and scientists learn about and help advance research for rare diseases. Check out the winners from the latest Rare Diseases Are Not Rare! Challenge, which aims to raise awareness of all rare diseases and the importance of rare diseases research.